LGBTIQ+ people in Brazil left to support themselves during COVID-19: vulnerabilities, coping strategies, and recommendations for more inclusive crisis policies

This post was originally written for Policy@Manchester and posted on July 26, 2021, at http://blog.policy.manchester.ac.uk/posts/2021/07/lgbtiq-people-in-brazil-left-to-support-themselves-during-covid-19-vulnerabilities-coping-strategies-and-recommendations-for-more-inclusive-crisis-policies/

A version of this blog is available to read in Portuguese here.

COVID-19 has brought huge change to society. However, the impacts have been different and disproportionate for different groups including LGBTIQ+ populations. As University of Manchester research has reported, there have been gaps in government and transnational responses in recognising and addressing those inequalities. In a previous blog post, Billy Tusker Haworth discussed COVID-19 experiences and policy recommendations relating to LGBTIQ+ people in the UK, now Billy and Luan Cassal discuss the impact on LGBTIQ+ communities in Brazil.

  • LGBTIQ+ people across the world have faced diverse and unique challenges, exacerbated by the COVID-19 pandemic
  • LGBTIQ+ social movements and support organisations can guide, pressure and monitor the actions of government, and produce information on harm reduction practices. Developing effective partnerships between sectors is important, with co-production of policies as a goal
  • Policy approaches must recognise diversity and inequalities within LGBTIQ+ communities, and consider the importance of intersecting factors in shaping lived experiences of marginality in Brazil, such as race and class, alongside sexuality and gender identity

Brazilian experiences

Brazil is marked by a history of colonialism, enslavement, and authoritative regimes. Reactionary discoursesviolence and murders against LGBTIQ+ people are frequent. Trans and non-binary people are especially targeted, and other identity categories such as race, age, and religion can enhance those vulnerabilities. This hostile context has produced strong social and political movements in gender and sexuality, achieving a series of judicial decisions and public policies for LGBTIQ+ people’protection and inclusion. Even if limited, these actions demonstrate strength and resilience.

Currently, Brazil has the second highest COVID-19 death toll and third highest number of cases globally. Structural inequalities without adequate actions became evident during the pandemic. Brazilian LGBTIQ+ associations reported that LGBTIQ+ people suffer the effects of the pandemic combined with recent political policies (reducing public funding for social protection and development) and an authoritative federal government (which rejects specific actions for LGBTIQ+ protection). The Brazil COVID-19 response has been criticised, with the President opposing social distancing measures, lockdowns, and vaccination, and advocating for ineffective medications.

Our study sought insights into challenges faced and coping capacities adopted by LGBTIQ+ people in Brazil during COVID-19. We interviewed 12 LGBTIQ+ people living in the states of São Paulo and Rio de Janeiro during the ‘first wave’ of the pandemic in 2020.

Key challenges experienced

Mental health was the main concern of the LGBTIQ+ people interviewed. Participants described experiences of anxiety, depression, exhaustion, uncertainty about the future, and difficulty maintaining healthy routines. Historically oppressed, LGBTIQ+ people in Brazil had created safe spaces for resisting persecution, such as political groups, cultural spaces, public centres and social organisations. When local governments first implemented lockdowns, no alternatives for these spaces and activities were provided. This, coupled with reduced access to community and public support services, increased isolation and negatively impacted mental health and quality of life.

People struggled to find information on how to manage their wellbeing and stay safe in the pandemic generally, let alone any specific guidance for LGBTIQ+ lives. Each level of government (City, State, and Federal) communicated different, contradictory COVID-19 guidelines. This generated misinformation and heightened stress.

How have people coped?

Without clear instructions, individuals determined their own protective measures and responses, including staying and working at home where possible, physical distancing, limiting social circles, prioritizing particular activities or self-quarantining before meeting vulnerable people, and following information from outside sources, such as WHO information on masks.

Even when physically distant, LGBTIQ+ people created opportunities for socialising and reducing loneliness. Social media, video calls and online activities became more frequent for offering and receiving support, with friends, community groups and professional services.

However, inequalities within LGBTIQ+ populations meant that these privileges were not available to everyone. Study participants expressed solidarity and concern for more-disadvantaged members of LGBTIQ+ communities, such as trans and non-binary people or those without secure jobs and income.

Other identity characteristics intersected with gender and sexuality to shape pandemic experiences. For black people, their race – as an additional axis of oppression in Brazil – was perhaps even more important in their lives than gender or sexuality. One interviewee described that while sexuality could be concealed at work, job interviews, or in social settings, their race cannot, limiting employment opportunities and social circles compared to white people. In this context, community support and mutual aid were essential for helping many people cope during COVID-19. For example, groups of black lesbian and bisexual women who came together to assist with loneliness, wellbeing and financial stress by fundraising and providing social, health and income support for poorer black LGBTIQ+ people.

How do we improve?

Our study highlights both vulnerabilities, exacerbated by gaps in government pandemic responses, and resilience capacities across LGBTIQ+ populations that should inform current and future crisis policies. In the short term we recommend prioritising access to health, work and social assistance for the most vulnerable groups, including specific assistance to improve access for LGBTIQ+ people to mental wellbeing, healthcare and other social services, and inclusion of LGBTIQ+ needs in broader and intersectoral programmes, such as government emergency aid. LGBTIQ+ social movements and support organisations can guide, pressure and monitor the actions of government, and produce information on harm reduction practices. Developing effective partnerships between sectors is important, with co-production of policies as a goal.

There are existing government LGBTIQ+ reference centres in Brazil which appeared underutilised by our study participants. These should be important sites of support and advice to LGBTIQ+ people in need, and could be better-utilised for disseminating targeted guidance for COVID-19 and other crises. These centres must be expanded in terms of locations and capacities, and must be more widely advertised.

Crisis situations highlight the need for social care and public protection. For marginalised groups like LGBTIQ+ people, this need remains in ‘normal’ times. Improved access to health services without discrimination, housing security, support for victims of violence, and equal access to education and employment opportunities and stable jobs are all needs exacerbated during the pandemic, but that require longer term attention and solutions. The specific needs of LGBTIQ+ people must be included in not only future crisis responses, but in all public policy planning. Policy approaches must recognise diversity and inequalities within LGBTIQ+ communities, and consider the importance of intersecting factors in shaping lived experiences of marginality in Brazil, such as race and class, alongside sexuality and gender identity.

Implementing these recommendations in the historical and contemporary political, social and ideological context of Brazil will not be easy. But we hope that by raising them we may at least contribute to necessary dialogue for the better-inclusion of LGBTIQ+ people in crisis policies and beyond. Ultimately, to move towards greater inclusion for marginalised groups it is these very political, social and ideological structures that we must interrogate, as these constitute the root causes of vulnerabilities and uneven crisis impacts.

Policy@Manchester aims to impact lives globally, nationally and locally through influencing and challenging policymakers with robust research-informed evidence and ideas. Visit our website to find out more, and sign up to our newsletter to keep up to date with our latest news.

About Luan Cassal

Luan is a PhD candidate in Education and research assistant at University of Manchester. He has expertise in educational psychology, violence, and public policies for LGBTIQ+ community, studying experiences in Brazil, Portugal, and the UK.

About Billy Haworth

Billy is a geographer in the Humanitarian and Conflict Response Institute, University of Manchester. They have expertise in critical human geography, geographic information science, and international disaster studies. Billy’s current research focuses on LGBTIQ+ marginalisation and coping capacities during crises

Policy@Manchester: LGBTIQ+ experiences of COVID-19 in the UK and the need for more inclusive crisis policies

This post was originally written for Policy@Manchester and posted on March 10, 2021, at http://blog.policy.manchester.ac.uk/posts/2021/03/lgbtiq-experiences-of-covid-19-in-the-uk-and-the-need-for-more-inclusive-crisis-policies/

Reading not for you? Listen to this article instead.

The COVID-19 pandemic has had wide-ranging effects for people across the UK. However, some groups have felt the effects of the pandemic and its associated lockdowns more than others. In this blog, Dr Billy Haworth, from the Humanitarian and Conflict Response Institute, shares their recent research into the experiences of LGBTIQ+ populations during COVID-19. They argue that LGBTIQ+ populations have faced unique challenges, and will require additional support to help them overcome the effects of the crisis. There is great diversity and even inequality within LGBTIQ+ populations, and in the longer-term, policymakers need to ensure that their policies are fit for all prior to implementation.

  • LGBTIQ+ populations have reported a vast range of challenges to their lives during the COVID-19 pandemic.
  • The sudden removal of support networks and identity-affirming spaces has disproportionately affected these individuals.
  • LGBTIQ+ community groups and volunteer organisations have filled gaps, and policymakers need to support and expand the important work of these groups.
  • In the long-term, policymakers need to move away from ‘one-size-fits-all’ approaches when they design policies for managing crises.

The coronavirus pandemic and associated response measures have had disproportionate impacts on different segments of society. This includes people with diverse sexual orientation, gender identity/expression, and sexual characteristics (SOGIESC), or who are more commonly known as lesbian, gay, bisexual, trans, intersex, and queer (LGBTIQ+) populations. Mental health challenges, social isolation, substance misuse, loss of livelihood and financial difficulties, scapegoating, discrimination and stigma, elevated risk of violence, reduced access to health and support services, and more have been reported as experienced among LGBTIQ+ populations.

LGBTIQ+ experiences

We know that socio-economically marginalised groups, including LGBTIQ+ people, are often the hardest hit during crises, as marginality leads to increased vulnerability. Crisis responses generally do not adequately account for LGBTIQ+ needs, if at all. Moreover, response strategies themselves can heighten and reproduce vulnerabilities by assuming binary cisgender (people whose gender identity matches their sex assigned at birth) and heterosexual identities as the norm, thereby failing to address the needs of minority populations. A United Nations report described how COVID-19 responses reproduced and intensified pre-existing exclusion and discrimination patterns for LGBTIQ+ people. For example, same-sex couples in the Philippines were denied COVID-19 support because of local government views on what counts as a “family” for food aid distributions.

Complementing other reports, I conducted in-depth interviews with a diverse range of LGBTIQ+ people in the UK between May and October 2020 to capture and understand their experiences of COVID-19. This timeframe represents various stages of the UK’s pandemic response, including lockdowns and periods of easing and tightening of restrictions.

My research exposed key challenges for LGBTIQ+ people during the pandemic. Significant mental health impacts were felt, especially during lockdown. This included increased anxieties about the virus and issues related to gender or sexual identity. Isolation from supportive people and identity-affirming spaces elevated stress. Some participants described being at home with unsupportive families, or having limited biological family relationships, reducing the support networks that so many people relied on in the pandemic.

Supportive spaces

Some industries, like the hospitality and entertainment sectors, have experienced greater impacts of the COVID-19 pandemic and associated social and economic restrictions. LGBTIQ+ people working in these areas expressed concerns over income in the short term and anxieties about longer-term employment prospects. More widely, disruptions to LGBTIQ+ spaces have been acutely felt, including nightlife, but also community spaces, support groups and activities like Pride festivals. These spaces usually provide many LGBTIQ+ people with essential opportunities to freely and safely express themselves and their identities.

The National LGBT Survey found that LGBTIQ+ people were more likely to suffer mental health challenges without adequate support, and that LGBTIQ+-friendly spaces, including nightlife and Pride events, are highly important but in decline. Based on this information, policymakers could have predicted the intensification of these issues during COVID-19, yet gaps persisted in policies and responses.

Existing and new community groups filled critical gaps in providing mental health support and reducing isolation through mutual aid and the creation of safe and identity-affirming (online) spaces. In fact, moving activities online presented opportunities to connect with new and diverse audiences, in some ways improving accessibility. Community organisations and peer-support groups were vital for many LGBTIQ+ people during COVID-19.

Diversity within LGBTIQ+ populations

My research makes clear that there is no single LGBTIQ+ experience. Diversity of COVID-19 experiences reflects diversity within LGBTIQ+ populations, including diversity between different subcategories, but also intersections with other factors, like age, class, disability or race.

My research highlighted unique challenges for transgender people. While cisgender people experienced disruptions to healthcare access, this issue was particularly significant for transgender patients. Healthcare relating to gender affirmation and gender identities was delayed if not halted completely, often without communication. This caused confusion and anxiety, exacerbated mental health concerns, and added to already long waiting periods for gender identity clinics. These delays, coupled with people being at home with their bodies more and reduced access to support, also contributed to gender dysphoria.

If we overlook diversity and only account for the most visible experiences, such as those of cisgender gay men, we risk furthering inequalities within minority groups.

How can policies be improved?

In the short term, policies should prioritise access to disrupted services that were directly related to the aspects of LGBTIQ+ vulnerability most exacerbated during COVID-19 lockdowns. This should include facilitating increased and targeted mental health support through training and resources, and maintaining access to healthcare during crises, especially transgender care.

Resources should be allocated to support and expand upon the important work already being done by LGBTIQ+ community, volunteer and mutual aid organisations. This could include: appointing LGBTIQ+ liaison personnel within COVID-19 recovery groups to build strategic partnerships and facilitate knowledge sharing, linking government and non-government activities, and targeting support measures where they are most needed and will be most effective.

For longer-term change, policies cannot continue being based on assumptions that populations are cisgender and heterosexual. They must not only include and account for LGBTIQ+ needs and capacities, but must recognise diversity within the LGBTIQ+ population. “One-size-fits-all” approaches are ineffective for the broad UK population, and likewise are not appropriate for communities as diverse as LGBTIQ+. To better incorporate LGBTIQ+ diversity, SOGIESC education should be included as part of workplace training programmes for government and crisis management organisations. Co-production of policies should also be a goal; involving communities and harnessing community wisdom is an important component of crisis management. Productive dialogue with LGBTIQ+ people themselves and the groups and organisations that represent them is essential for developing inclusive and efficient strategies.

Lastly, policies must shift focus away from crisis response towards risk reduction. If we were more prepared and marginalised sectors of society were better supported, we would see less severe impacts – as disaster studies have informed. We must work now to address the political, economic and social structures that place particular groups at increased vulnerability to crises, including LGBTIQ+ people, to mitigate the negative impacts of future hazards, pandemic or otherwise.

Take a look at our other blogs exploring issues relating to the coronavirus outbreak.

Policy@Manchester aims to impact lives globally, nationally and locally through influencing and challenging policymakers with robust research-informed evidence and ideas. Visit our website to find out more, and sign up to our newsletter to keep up to date with our latest news.

Researching experiences of gender and sexual minorities during the COVID-19 pandemic

Dr Billy Tusker Haworth
Pronouns: he/him or they/them
Lecturer in International Disaster Management

Equality, Diversity & Inclusion representative
Humanitarian and Conflict Response Institute,
University of Manchester
Email: billy.haworth@manchester.ac.uk
Website: www.billyhaworth.com
Twitter: @BillyTusker
Main research areas: geography, critical and
participatory GIS, disaster vulnerability, queer
marginality, graffiti and spaces of conflict/peace

Reading not for you? Listen to this article instead.

Warning: the following may contain topics which some LGBTIQ+ readers may find distressing.

As the COVID-19 pandemic swept across the globe and we in the UK were sent into lockdown in March, scrambling to work from home and continue living our lives in the face of much uncertainty, I saw a unique opportunity.

I had already begun exploring the experiences of gender and sexual minorities during disasters theoretically with colleagues in Australia, and had been considering future potential case studies. Suddenly I was presented with the chance to conduct primary research during a live crisis that would undoubtedly impact minority groups in profound, and likely insufficiently documented ways. Moreover, I was experiencing the crisis at the same time, also as a member of minority groups, being a migrant to the UK and identifying as queer (though I completely acknowledge the class and race (white) privileges I receive). I felt I was in a position to make a contribution to understanding the experiences of marginalised gender and sexual minorities and to hopefully suggest improvements for more inclusive response strategies for future public health or other crises.

Since gaining University ethics approval in April, I have been conducting detailed interviews with lesbian, gay, bisexual, trans, intersex and queer+ (LGBTIQ+) people over Zoom in the UK and Brazil, with help from my Brazilian research assistant Tiago de Paula Muniz for interviews in Portuguese. There are of course various limitations to this method, not least inequalities associated with internet access, with often marginalised people having the least access to such information and communication technologies, particularly in Brazil, thus influencing participation patterns. However, overall we have gained important insights from a wide variety of people within the LGBTIQ+ community. Though interviews are still ongoing and detailed data analysis is yet to be completed, in this post I wish to share some of the preliminary insights we have gained so far.

Research background

LGBTIQ+ identities are often not considered in disaster and humanitarian strategies, yet they experience unique vulnerabilities linked to inequality and marginalisation.

Prior to COVID-19, LGBTIQ+ people already faced increased risk of anxiety and suicide and disproportionate rates of insecure employment and housing. Research and policies tend to treat gender and sexual minorities as homogeneous, overlooking diversity. This can contribute to further inequalities, with the voices of more visible groups, such as gay men, viewed as representing all LGBTIQ+ experiences. Further, little research or policy attention has been given to coping capacities and resilience of LGBTIQ+ individuals and communities. Revelation of such experiences is particularly important when key aspects of community resilience, such as social connectedness, are being disrupted and eroded through social distancing and lockdowns.

The UK and Brazil represent different social, cultural, economic and political contexts on which the same crisis (coronavirus) is impacting, which provides a unique opportunity to uncover common learnings and important differences in experiences and responses. For example, in the UK, gender identity and sexuality are protected characteristics under the Equality Act and require special consideration, whereas despite advances, LGBTIQ+ people in Brazil still experience discrimination and exclusion without adequate protections; Brazil has some of the highest rates globally of homophobia and transphobia related deaths.

The pandemic has had devastating impacts on LGBTIQ+ populations in both contexts. For instance, in the UK LGBTIQ+ people have reported experiencing increased mental health challenges, isolation, substance misuse, financial difficulties, and reduced access to health and support services. In Brazil, job losses and social and economic exclusion have been severe for gender and sexual minorities, and without effective action from the Bolsonaro government LGBTIQ+ people have had to turn to informal peer support to survive, including communal squat housing.

Initial insights from interviews

Isolation

Through our interviews to date we have learnt of people stuck living for months with family who do not accept their gender or sexual identity, through intersection with faith and other reasons. Isolation from supportive people and identity-affirming spaces has caused significant heightened stress and mental health concerns for some LGBTIQ+ people.

Access to medical care

Transgender people have told me how their medical care, both essential and elective, relating to gender reassignment and their identities has been delayed if not halted completely, often without adequate notice, adding to already-long waiting periods and highlighting a lack of appropriate care for such patients during the pandemic. I’ve learnt of exacerbated gender dysphoria resulting from people being at home with their bodies, seeing their bodies more, having less external incentive to dress or prepare their bodies in particular ways (e.g. chest binding), and with reduced access to support.

Technology

Many of us have benefited from technology during this time, using platforms like Zoom to reduce social isolation by connecting with family, friends, colleagues and other online support. But these benefits are not shared across populations equally, with some of our participants being without access to computers or reliable internet. Further, some described anxiety associated with these platforms and the required mental and physical effort to prepare and present themselves in order to be read as their correct gender over a video call, for example. This demonstrates an important link with identity that is less likely to be experienced by non-trans or non-queer people.

Lack of inclusion and support

A common theme emergent in both UK and Brazil interviews is dissatisfaction with government responses to the pandemic. In the UK people described how they didn’t see themselves, their diverse family makeups, or their lifestyles reflected in government guidance and risk communication, with priorities seemingly cis-heteronormative (e.g. a focus on heterosexual couples with school-aged kids). In Brazil people have described feeling forgotten, like they are being left to die or else find their own means of protecting themselves, with clear guidance and support from authorities lacking.

Some people have told me they don’t know how long they can go on like this, as they face issues like insecure housing, reduced work and income, and isolation. This applies to both the UK and Brazil, as described both by affected individuals and people who have been working in LGBTIQ+ support organisations.

We have also heard stories of resilience, kindness, and mutual aid, with people drawing on their existing coping capacities and collective resources to help others.

Resilience and coping capacities

Some people described how they were able to monitor and manage their personal wellbeing during the pandemic by using indicators and strategies developed through past experiences of distress or marginalisation, such as adopting regular daily routines, maintaining healthy diet and monitoring alcohol consumption, exercising, or talking about their challenges and feelings to friends or therapists.

Networks and community

Existing and new networks and community groups have proven vital for LGBTIQ+ people, providing mutual aid and safe and identity-affirming (online) spaces to share experiences and connect with others. Organisations like Hidayah, which offers support and community for LGBTIQ+ people of Islam faith, have had to move all their activities online. But this has also allowed them to reach audiences much further afield, such as in the Middle East and the US, forging new connections and providing social aid and assistance in new and diverse ways.

Similarly, the queer community group in Manchester, Queer Family Tea, usually holds a weekly in-person alcohol-free meet up with food, activities and entertainment, often for young LGBTIQ+ people seeking an alternative to the “gay scene” of Canal Street to connect with likeminded people. During COVID they have shifted online with weekly meet-ups, online cabarets, life drawing classes and other workshops. As with Hidayah, they have seen many new people joining, and some of those involved have said that running and organising such activities has given them a much-needed sense of purpose and life-motivation in what would otherwise be difficult and lonely times. Responses to future crises should not only better-recognise the unique challenges faced by gender and sexual minorities, but look to support and grow existing resilience, coping and mutual aid capacities.

Societal pressure

For some the pandemic has also provided temporary relief from some of the pressures of “normal life”, such as societal pressures to conform to binary gender roles or the public scrutiny of trans bodies. One participant who had come out publicly as transgender just before the pandemic suggested they wouldn’t mind the lockdown to last a bit longer as it was allowing time for them to transition and become more comfortable with their own body and its changes away from the outside world – the pandemic as an escape. This isn’t to suggest they were insensitive to the challenges many have faced during lockdowns. Rather, it highlights the pressure and challenges that queer people already confront in daily life and reminds us that crises such as a pandemic do not necessarily create marginalisation and vulnerabilities so much as they expose and exacerbate those already present across our societies.

Despite the risks of the pandemic, communities came together for the Trans+ Pride March in London, protesting against inequalities experienced by transgender people in “normal” life.
Photo credit: Steve Eason, 12 September 2020.

Diversity and intersectionality

Experiences of COVID-19 across the LGBTIQ+ community remind us that the queer population is incredibly diverse. Our interviews have highlighted important differences between LGBTIQ+ sub-groups. For example, in general cisgender gay white males experienced less financial, employment and housing instability compared to others (of course this isn’t to say they haven’t also faced challenges). Recognition of such uneven privilege was especially prominent in the Brazilian interviews.

There is also great diversity within those subgroups, and of course it’s not the case that every lesbian or every intersex person, for instance, has the same experience as all others. To many readers these ideas won’t be new, but in practice LGBTIQ+ people are still largely described and treated as one group (including to some extent by me in this post).

I find the concept of intersectionality useful in adding nuance to our understandings of minority experiences and vulnerabilities. Stemming from black feminist activism scholarship, intersectionality can help us see how different characteristics (and axes of oppression) intersect to shape a person’s lived experiences and marginalisation, such as by examining the relationships between gender, sexuality, race, ethnicity, class, education, disability, religion, and more. While I agree there are good justifications for regarding LGBTIQ+ people as one community in many respects, overlooking the diversity of experiences can result in ineffective policies. I don’t pretend that developing strategies aimed at such diverse populations is easy, but to more effectively reduce vulnerabilities for minority groups we must give these issues greater consideration.

Reflections on positionality and the research process

Being queer and experiencing a pandemic at the same time as researching queer experiences of COVID-19 has been insightful but also challenging. I refer specifically to challenges of dealing with heavy topics and the need for self-care. Sometimes during interviews I feel like I am listening to my own friends. Many of the experiences we are hearing about, such as isolation or increased stress, are close to our own lives. Tiago and I are also living in the UK away from our families during the pandemic, who are in Brazil and Australia respectively. Our ‘family’ here is very much other queer people, a kind of chosen family away from home. The overlap of research subject with personal life has been confronting at times.

We’ve learnt some strategies to help us process what are sometimes difficult and saddening interviews. It’s important to ensure we have time to decompress (so don’t do multiple interviews back-to-back or in the evening before bed!), and we are fortunate we can talk to each other about how the interviews made us feel.

But I also recognise my relative privilege compared to many of our participants, in that I have relatively secure income, housing, access to friends and resources etc…which coupled with the stories people tell me motivates me even more to continue the research, despite difficult topics at times. Tiago says the same for the interviews in Brazil. He describes the motivation of giving voice to people who often don’t have one. I have also benefited from that queer community support and collective resilience described above in helping me cope with the pandemic. It also helps me ground and understand what is happening to and around me at this time, as a citizen, a queer person, and as a researcher. As scholars, I think we ought to think about these issues more critically, particularly regarding mental health for those researchers working in the disaster and humanitarian sector.

What next?

I have felt incredibly privileged to hear people’s stories. People are giving me their time, energy and honest reflections during what is a difficult period for everybody, and I now have a responsibility to do something meaningful with the data.

Awareness of the dynamic and diverse challenges LGBTIQ+ people face is critical to foster change for improved outcomes, and so it is essential to produce not only academic research outputs, but materials aimed at policymakers, NGOs and activist groups already working with marginalised communities in a language and format they can use.

Currently I am in the midst of transcribing and analysing interviews and will then begin preparing journal articles and policy briefs in English and Portuguese, as well as communications for wider public audiences. I would eventually like to see the research contributing to improved policies and responses, which could include more targeted funding and relief, tailored mental health support, and approaches that recognise the intersecting and compounding effects of multiple characteristics, such as gender and sexuality with race, disability, income, and more – providing alternatives to inefficient ‘one size fits all’ approaches.

Need support?

If you are LGBTIQ+ and experiencing distress during COVID-19, you could consider contacting one of the following organisations for support:

Online tools can help people in disasters, but do they represent everyone? (article in The Conversation)

This article originally appeared in The Conversation.
Billy Tusker HaworthUniversity of ManchesterChristine EriksenUniversity of WollongongScott McKinnonUniversity of Wollongong

With natural hazard and climate-related disasters on the rise, online tools such as crowdsourced mapping and social media can help people understand and respond to a crisis. They enable people to share their location and contribute information.

But are these tools useful for everyone, or are some people marginalised? It is vital these tools include information provided from all sections of a community at risk.

Current evidence suggests that is not always the case.

Online tools let people help in disasters

Social media played an important role in coordinating response to the 2019 Queensland floods and the 2013 Tasmania bushfires. Community members used Facebook to coordinate sharing of resources such as food and water.

Crowdsourced mapping helped in response to the humanitarian crisis after the 2010 Haiti earthquake. Some of the most useful information came from public contributions.

Twitter provided similar critical insights during Hurricane Irma in South Florida in 2017.

Research shows these public contributions can help in disaster risk reduction, but they also have limitations.

In the rush to develop new disaster mitigation tools, it is important to consider whether they will help or harm the people most vulnerable in a disaster.

Who is vulnerable?

Extreme natural events, such as earthquakes and bushfires, are not considered disasters until vulnerable people are exposed to the hazard.

To determine people’s level of vulnerability we need to know:

  1. the level of individual and community exposure to a physical threat
  2. their access to resources that affect their capacity to cope when threats materialise.

Some groups in society will be more vulnerable to disaster than others. This includes people with immobility issues, caring roles, or limited access to resources such as money, information or support networks.

When disaster strikes, the pressure on some groups is often magnified.

The devastating scenes in New Orleans after Hurricane Katrina in 2005 and in Puerto Rico after Hurricane Maria in 2017 revealed the vulnerability of children in such disasters.

Unfortunately, emergency management can exacerbate the vulnerability of marginalised groups. For example, a US study last year showed that in the years after disasters, wealth increased for white people and declined for people of colour. The authors suggest this is linked to inequitable distribution of emergency and redevelopment aid.

Policies and practice have until recently mainly been written by, and for, the most predominant groups in our society, especially heterosexual white men.

Research shows how this can create gender inequities or exclude the needs of LGBTIQ communitiesformer refugees and migrants or domestic violence victims.

We need to ask: do new forms of disaster response help everyone in a community, or do they reproduce existing power imbalances?

Unequal access to digital technologies

Research has assessed the “techno-optimism” – a belief that technologies will solve our problems – associated with people using online tools to share information for disaster management.

These technologies inherently discriminate if access to them discriminates.

In Australia, the digital divide remains largely unchanged in recent years. In 2016-17 nearly 1.3 million households had no internet connection.

Lower digital inclusion is seen in already vulnerable groups, including the unemployed, migrants and the elderly.

Global internet penetration rates show uneven access between economically poorer parts of the world, such as Africa and Asia, and wealthier Western regions.

Representations of communities are skewed on the internet. Particular groups participate with varying degrees on social media and in crowdsourcing activities. For example, some ethnic minorities have poorer internet access than other groups even in the same country.

For crowdsourced mapping on platforms such as OpenStreetMap, studies find participation biases relating to gender. Men map far morethan women at local and global scales.

Research shows participation biases in community mapping activities towards older, more affluent men.

Protect the vulnerable

Persecuted minorities, including LGBTIQ communities and religious minorities, are often more vulnerable in disasters. Digital technologies, which expose people’s identities and fail to protect privacy, might increase that vulnerability.

Unequal participation means those who can participate may become further empowered, with more access to information and resources. As a result, gaps between privileged and marginalised people grow wider.

For example, local Kreyòl-speaking Haitians from poorer neighbourhoods contributed information via SMS for use on crowdsourced maps during the 2010 Haiti earthquake response.

But the information was translated and mapped in English for Western humanitarians. As they didn’t speak English, vulnerable Haitians were further marginalised by being unable to directly use and benefit from maps resulting from their own contributions.

Participation patterns in mapping do not reflect the true makeup of our diverse societies. But they do reflect where power lies – usually with dominant groups.

Any power imbalances that come from unequal online participation are pertinent to disaster risk reduction. They can amplify community tensions, social divides and marginalisation, and exacerbate vulnerability and risk.

With greater access to the benefits of online tools, and improved representation of diverse and marginalised people, we can better understand societies and reduce disaster impacts.

We must remain acutely aware of digital divides and participation biases. We must continually consider how these technologies can better include, value and elevate marginalised groups.

____________________________________________________________________________________________

____________________________________________________________________________________________
Billy Tusker Haworth previously received funding from the Bushfire and Natural Hazards Cooperative Research Centre.
Christine Eriksen receives funding from the Australian Research Council (DE150100242, DP170100096).
Scott McKinnon has previously worked on projects funded by the Australian Research Council.
University of Wollongong provides funding as a member of The Conversation AU.
University of Manchester provides funding as a member of The Conversation UK.